Family fighting for cure after daughter's batten disease diagnosis
2:32
Family fighting for cure after daughter's batten disease diagnosis
9 months ago
CBS News
Family fighting for cure after daughter's batten disease diagnosis
2:31
Family fighting for cure after daughter's batten disease diagnosis
9 months ago
MSNCBS Minnesota
Understanding Batten - Beyond Batten Disease Foundation
Understanding Batten - Beyond Batten Disease Foundation
Jan 7, 2020
beyondbatten.org
—Gelastic Seizures— Gelastic seizures are rare focal/partial seizures that begin in one part of the brain. They are often called laughing seizures.They look like forced smiles or a one-sided grin with bouts of uncontrolled laughter or giggling. Although the child may be smiling or laughing, it is usually in the absence of joy or happiness. The laughing usually sounds different than the child’s normal laughter (more forced and rhythmic). For some children it manifests more as mumbling or grunting
0:24
—Gelastic Seizures— Gelastic seizures are rare focal/partial seizures that begin in one part of the brain. They are often called laughing seizures.They look like forced smiles or a one-sided grin with bouts of uncontrolled laughter or giggling. Although the child may be smiling or laughing, it is usually in the absence of joy or happiness. The laughing usually sounds different than the child’s normal laughter (more forced and rhythmic). For some children it manifests more as mumbling or grunting
13.2K viewsMar 28, 2022
FacebookCLN1 Batten Disease, Hope for a Cure
•• Absence Seizures •• Absence seizures, sometimes referred to as “petit mal” seizures, are another common type of seizure experienced by children with CLN1. According to our survey data, 57% of the CLN1 population has them. Absence seizures are generalized seizures, meaning they affect both sides of the brain at the same time. They cause brief, sudden lapses in awareness, often with episodes of staring blankly. Because of this presentation, absence seizures are often mistaken as a child daydrea
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•• Absence Seizures •• Absence seizures, sometimes referred to as “petit mal” seizures, are another common type of seizure experienced by children with CLN1. According to our survey data, 57% of the CLN1 population has them. Absence seizures are generalized seizures, meaning they affect both sides of the brain at the same time. They cause brief, sudden lapses in awareness, often with episodes of staring blankly. Because of this presentation, absence seizures are often mistaken as a child daydrea
40K viewsFeb 10, 2021
FacebookCLN1 Batten Disease, Hope for a Cure
Today is International Batten Disease Awareness Day 🧡 This means that families all over the world will be raising awareness of a disease which affects children and young adults. Batten Disease has no cure and is always fatal. Help us to create awareness by interacting and sharing our posts 🧡 We are super proud of our little girl, she was born into a world of rare disease. At three years old she is already advocating for her brother and sister who are affected by this horrific disease 💔 Batten
0:11
Today is International Batten Disease Awareness Day 🧡 This means that families all over the world will be raising awareness of a disease which affects children and young adults. Batten Disease has no cure and is always fatal. Help us to create awareness by interacting and sharing our posts 🧡 We are super proud of our little girl, she was born into a world of rare disease. At three years old she is already advocating for her brother and sister who are affected by this horrific disease 💔 Batten
7.1K viewsJun 9, 2023
FacebookOllie's Army Battling Against Battens
Mila’s legacy: The little girl who could change how medicines are made in Britain
Mila’s legacy: The little girl who could change how medicines are made in Britain
Mar 28, 2024
The TelegraphNatasha Loder
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epicscene on Instagram: "Follow @epicscene_1 for more Not knowing is not an excuse 🎥 love Kennedy: Kennedy Hansen, a funny, loving child, inexplicably begins to fall. It takes years for the diagnosis: Juvenile Batten Disease, an extremely rare, terrible, and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn’t end at her death; that’s when the miracles really begin. Based on a
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Netplix | Movies | Entertainment on Instagram: "She was so sweet 😭 🎬: Love, Kennedy Although Kennedy Hansen is a funny, loving child, she inexplicably begins to fall ill. It takes years for the diagnosis: Juvenile Batten Disease - an extremely rare, terrible and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn’t end at her de*th. That’s when the miracles really begin. 📺: Tu
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filmfunda on Instagram: "Not knowing is not an excuse 🎥 love Kennedy: Kennedy Hansen, a funny, loving child, inexplicably begins to fall. It takes years for the diagnosis: Juvenile Batten Disease, an extremely rare, terrible, and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn’t end at her death; that’s when the miracles really begin. Based on a true story. 📺 watch on: prim
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memes and movies account on Instagram: "I wish the ending was different 🥺 🎥 love Kennedy: Kennedy Hansen, a funny, loving child, inexplicably begins to fall. It takes years for the diagnosis: Juvenile Batten Disease, an extremely rare, terrible, and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn’t end at her death; that’s when the miracles really begin. Based on a true sto
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Moviecore on Instagram: "This movie 🥺😭😭 🎬: Love, Kennedy Although Kennedy Hansen is a funny, loving child, she inexplicably begins to fall ill. It takes years for the diagnosis: Juvenile Batten Disease - an extremely rare, terrible and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn’t end at her de*th. That’s when the miracles really begin. 📺: Tubi, PLEX, Pluto Tv #relat
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Instagrammoviecore9
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Motivational & Relatable on Instagram: "This movie had me bawling 🎬: Love, Kennedy Although Kennedy Hansen is a funny, loving child, she inexplicably begins to fall ill. It takes years for the diagnosis: Juvenile Batten Disease - an extremely rare, terrible and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn’t end at her de*th. That’s when the miracles really begin. 📺: Tubi
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Instagramadvice
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Media Entertainment Comedy on Instagram: "Not knowing is not an excuse Love Kennedy: Kennedy Hansen, a funny, loving child, inexplicably begins to fall. It takes vears for the diagnosis: Juvenile Batten Disease, an extremely rare terrible, and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years Kennedy leaves behind a great legacy of love and friendship. But her story doesn't end at her death that's when the miracles really begin. Based on a true story. watch
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Instagramclipusamedia
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Vannyz Reel | 📖 Kennedy Hansen, a funny, loving child, inexplicably begins to fall. It takes years for the diagnosis: Juvenile Batten Disease, an... | Instagram
4.3K views3 months ago
Instagramvannyzreel
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@joy_trend_01 on Instagram: "LabViews_390987SuFY This instagram reel Not knowing is not an excuse Kennedy Hansen, a funny, loving child, inexplicably begins to fall. It takes years for the diagnosis: Juvenile Batten Disease, an extremely rare, terrible, and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn’t end at her death; that’s when the miracles really begin. Based on a tr
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Instagramjoy_trend_01
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Us.silverscreens on Instagram: "Not knowing is not an excuse 📽:love Kennedy Kennedy Hansen, a funny, loving child inexplicably begins to fall. It takes vears for the diagnosis: Juvenile Batten Disease, an extremely rare, terrible, and terminal proanosis. There is no cure for Batten Disease. and after living onlv 16 vears, Kennedv leaves behind a great legacv of love and friendship. But her story doesn't end at her death; that's when the miracles really begin Based on a true story. watch on: pri
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Movies || Entertainment || Reels on Instagram: "movireelzone Not knowing is not an excuse love Kennedy: Kennedy Hansen, a funny, loving child, inexplicably begins to fall. It takes years for the diagnosis: Juvenile Batten Disease, an extremely rare, terrible, and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn't end at her death; that's when the miracles really begin. Based o
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1:38
Motivational & Relatable on Instagram: "She had such a beautiful soul 🎬: Love, Kennedy Although Kennedy Hansen is a funny, loving child, she inexplicably begins to fall ill. It takes years for the diagnosis: Juvenile Batten Disease - an extremely rare, terrible and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn’t end at her de*th. That’s when the miracles really begin. 📺:
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1:18
Love, Kennedy 2017 ‧ Drama Although Kennedy Hansen is a funny, loving child, she inexplicably begins to fall ill. It takes years for the diagnosis: Juvenile Batten Disease - an extremely rare, terrible and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn't end at her death. That's when the miracles really begin. #movie #fyp #viral #trending #explorepage
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TikTokmoviereelclip3
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Positive Vibees on Instagram: "Not knowing is not an excuse love Kennedy: 🎬 Kennedy Hansen, a funny, loving child, inexplicably begins to fall. It takes years for the diagnosis: Juvenile Batten Disease, an extremely rare, terrible, and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn't end at her death; that's when the miracles really begin. Based on a true story. watch on: p
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Motivational & Relatable | Even if she didn’t know, that was out of line .. 🎬: Love, Kennedy Although Kennedy Hansen is a funny, loving child, she inexplicably... | Instagram
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Eco Movie on Instagram: "Always choose kindness 🎬: Love, Kennedy Although Kennedy Hansen is a funny, loving child, she inexplicably begins to fall ill. It takes years for the diagnosis: Juvenile Batten Disease - an extremely rare, terrible and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn’t end at her de*th. That’s when the miracles really begin. 📺: Tubi, PLEX, Pluto Tv #
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Vintage Films | Kennedy Hansen, a delightful and affectionate child, inexplicably starts to fall. Years pass before the diagnosis is made: Juvenile Batten... | Instagram
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memes and movies account on Instagram: "Him praying for his daughter on his knees got me 😭 🎥 love Kennedy: Kennedy Hansen, a funny, loving child, inexplicably begins to fall. It takes years for the diagnosis: Juvenile Batten Disease, an extremely rare, terrible, and terminal prognosis. There is no cure for Batten Disease, and after living only 16 years, Kennedy leaves behind a great legacy of love and friendship. But her story doesn’t end at her death; that’s when the miracles really begin. Ba
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