Meet my 4th baby: Fragile Wings, Fierce Hearts 🦋 When Mackenzie was born, we were told she had a horrific disorder (Recessive Dystrophic Epidermolysis Bullosa), with a life full of pain ahead of her. But we were also told there was hope. That research had recently facilitated 2 new FDA approved treatments for EB (and 2 soon became 3 within a few months of Kenzie’s life!). That research was nearing the science behind what will likely become a cure. I understand that we are years away from a legi
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Jayco Discovery Gala 2025, proudly supporting the Cure EB Foundation! Our fabulous Triple Threats in Melbourne had such a lovely time performing some familiar classics 🪩💃 Thanks for having us @cureebfoundation! | Stage School Australia
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A simple wave or two letter word can make all the difference. #ComeSayHi at ebresearch.org to help find a cure for EB. | EB Research Partnership
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Fancy taking on a challenge for Cure EB this year? We've got lots of places available at events around the country - see cure-eb.org/challenges - or if you already have a place and would like to fundraise for us, please get in touch! Two of last year's London marathon runners talk about why they chose to run for Cure EB. 100% of funds raised go to our research projects so we can continue to #researchthecure for #EB #CureEB #FabulousFundraisers #Donate | Cure EB
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20 reactions · 12 shares | Could you donate a coffee to help cure EB like the team at Guy's and St Thomas' NHS Foundation Trust? Text CUREEB to 70560 to give £3 www.cure-eb.org/coffee ☕曆 Thanks to consultant dermatologist Prof Jemima Mellerio and EB Clinical Nurse Specialists Caroline MacKenzie & Annette Downe for this fabulous video! #CureEB #ResearchtheCure #CoffeetoCureEB | Cure EB | Facebook
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