My son’s cystic fibrosis diagnosis blindsided me after negative prenatal screening. More effective genetic testing would have given my family the chance to prepare.

An advisory panel of the U.S. Food & Drug Administration (FDA) said today it did not have sufficient clinical trial data to recommend approval of liprotamase, a non-porcine pancreatic enzyme therapy ...

The Cystic Fibrosis Foundation would like to thank New York Giants placekicker Josh Brown and Tommy Bahama for their efforts in supporting the search for a cure for cystic fibrosis. New York Giants ...

Nearly 2,000 individuals in the cystic fibrosis community provided insights on the burden of the disease, research priorities ...

Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I’ve found strength, purpose, and the unshakable belief that I must keep going — for myself ...

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

Today, there are close to 40,000 people in the United States with CF due in large part to more people living longer into adulthood, signaling a shift in what it means to live with CF in the modern era ...

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. I thought I ...

Grief is just one of the many emotions we all experience in life that makes us human. It is not linear. Some days you may feel like the world is caving in around you, while other days the weight is ...

A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that ...

The Foundation and Bakar Labs will support AVECRIS Pte Ltd and Nosis Biological Sciences as they pursue genetic therapies for cystic fibrosis with their novel technologies. Yesterday, at a reception ...