Charli qualifies for a gene therapy trial in California through the Charlotte and Gwenyth Gray Foundation but the family ...

Doctors told Gordon Gray his daughters would not live to see their 12th birthday — -- The Hollywood couple who started a foundation to quickly fund research to find a cure for Batten Disease, ...

For the three out of every 100,000 children who are born with Batten disease, the diagnosis is one of the most devastating that a family can receive. Emily Blackburn, 32, found out in March 2023 that ...

Olivia Burtwistle is a 12-year-old girl in search of a cure for Batten disease. — -- Olivia Burtwistle grew as a typically curious and energetic child until soon after her fourth birthday, when ...

BEST FOR THEIR CHILD. A DAY OF CARING AND A DAY OF HOPE FOR FAMILIES BATTLING A TERMINAL NEUROLOGICAL DISEASE FOR THEIR CHILDREN, GOVERNOR JIM PILLEN DECLARED JUNE 9TH AS BATTEN DISEASE AWARENESS DAY ...

EDEN PRAIRIE, MN / ACCESS Newswire / April 9, 2025 / Today, the Born and Schneider family announced the launch of Helen's Pink Sky Foundation, a new nonprofit dedicated to accelerating research, ...

Sad news to share today. Charlotte Gray died last Friday at age 13 and one half. The daughter of producer Gordon Gray and Kristen succumbed in her battle against the rare degenerative brain disorder ...

SAN ANTONIO — Charli is fighting an extremely rare and terminal condition often referred to as childhood dementia at just 4-years-old. Charli qualifies for a gene therapy trial in California later ...

Two years ago, he was diagnosed with a terminal illness called Batten disease -- often leading to blindness, seizures, and dementia.

(NEW YORK) — The Hollywood couple who started a foundation to quickly fund research to find a cure for Batten Disease, which their two daughters are living with, says they are counting on a miracle ...