Charli qualifies for a gene therapy trial in California through the Charlotte and Gwenyth Gray Foundation but the family ...

Batten disease is a family of 13 rare, genetically distinct conditions. Collectively, they are the most prevalent cause of neurodegenerative disease in children, affecting 1 in 12,500 live births in ...

A treatment for juvenile Batten disease has been tested in a mouse model and the results have shown reduced in symptoms and improved longevity. The results of the study were published in Nature ...

– There's no known cure for Batten disease, but that doesn't mean those affected by the rare, fatal illness won't go the distance to try to find one. Noah Coughlan, a 27-year-old California man, ...

UPDATE: The 4th annual Take a Swing Fore Batten online auction will be accepting bids from March 15-29, 2021. Click here to browse the incredible collection of items, including tee times at Oakmont, ...

"Until I know with certainty that we've arrested the progression of this disease and can help other families, I won't rest either," Gordon Gray tells PEOPLE When producer Gordon Gray and his wife ...

A year ago, golf-course architect David Kahn and his wife Karen went public with every parent’s worst nightmare: their twin daughters Amelia and Makenzie are battling Batten disease, the cruelest ...

The VanHoutans' son and daughter were diagnosed with Batten disease. Laine Vanhoutan was diagnosed with Batten disease as a toddler. Tracy and Jennifer Vanhoutan — -- For eight years, Tracy and ...

ARVADA, Colo. (CBS4) - As far as galas go, one held on Saturday in Arvada was pretty typical. There was mingling, drinks and a silent auction, but the reason for the event is pretty extraordinary.

Batten disease is an inherited neurological disease that is often fatal. It usually develops during childhood, between the ages of 5 and 10 years. The earliest symptoms range from being fairly obvious ...

Australian girl is one of 10 or 11 worldwide with rare form of Batten's disease. — -- When Olivia Thurston was born on January 15, 2008, weighing in at 8 pounds and 6 ounces, she was a happy and ...

Kristyna Wentz-Graff / OHSU Scientists at Oregon’s National Primate Research Center recently found some of their Japanese macaque monkeys had developed Batten disease. The outbreak was naturally ...